Imagine living with someone who has something so rare that you have never met anyone else like you
Imagine the joy of finding a group of scientists that are committing themselves and their life's work to your child's condition.
Imagine that child being one of a thousand or so in the world affected
Imagine as a parent finding a virtual world of parents out there who guide and inform you
Imagine being happy for them when each year they make it across the USA and meet at a conference with all the scientists and families
Now imagine a small but formidable European branch of this programme arranging a conference in Scotland at the end of July for those who can't see how they'll ever make it to the US one
And imagine how hard it is to raise money for something so small in a world where there's so much need
Now if you can, imagine giving a little, anything you can, to www.chromosome18eur.org, Chromosome 18 Registry and Research Society (Europe) Charity Number SC040399
Thank you for letting me hijack your imagination and for anything you can do.
Big Hug Sara!! One day we shall meet!
ReplyDeleteah, I certainly hope so Camilla! x
ReplyDeleteI am so thankful for the Registry. Without it, there would be no research to help our little guys!
ReplyDeletehey Candice, good to see you here as a fellow supporter of these wonderful people
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