I've had a perfectly nice response to my very honest vulnerable outpouring about various recent events, but one message contained within has forced me into my cave, for fear of saying the wrong thing and making everything worse, rocking a boat I don't want to rock.
What do I have to do to explain that it's not just the medical that is or will be altered by my boys' genetic disorder? That the "faulty" genetic formula in every single cell of his body makes him by definition NOT the same as the majority of the population. How do I prevent the fact that everytime I hear from people who I hoped knew better that he is the same, I get less rational.
When a child rages and cries, we tend to find a distraction. So right now I'm distracting myself by reposting the first contribution I made to Different Iz Good that seems to say how I feel more safely.