Last night we had a rambunctious bedtime, followed by lots of washing and carpet cleaning and finally a nice quiet story.
You see, when you turn a little boy upside down repeatedly (no matter how many times wifey has asked you not to do that before bed) on the odd occasion in the middle of hysterical laughter will come the cough, then the uh oh cough, and then the oh no! and the follow through
Which explains the washing and the carpet cleaning, not once but twice, because he did a little encore once the initial clear up was done, but this time we were ready.
So...
Cause - rough and tumble play daddy style
Effect - L becomes a paid up member of barf city
Hidden Benefits - confirmation that he still doesn't chew his food properly, due to unrequested close up of dinner during above-mentioned cleanup. Which though gross provides mummy with hands on example of his pharygeal hypotonia for the Statement letter.
Extra Hidden Benefit - teaching J what barf and yak mean and giggling before bedtime
Ah...Happy days!
I have commented before, but had not yet introduced my family. My hubby and I have been married for 6 yrs and have a 2yo son with 18q-. We have a family blog, posting about our day to day lives. We have mentioned Graham's special needs. However, to date, we had not yet mentioned his diagnosis of 18q-. We've only known for 2 mos now. It was such a delicate subject, one I wasn't even sure I'd share. Once we finally decided to share, it took me a while to find the words. I hope I did a good job expressing what it is like to receive a diagnosis such as this. You have done much to inspire me to share and your blog post express so many of the emotions we share. If you're curious, here's the link.
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http://wolfsonsafari.blogspot.com/
It's a joy to meet your family and I'm so glad I've been able to inspire you. Having read your blog, you do pretty well on that side too! It's early days for you but you're already streets ahead. As is your wonderful Graham. thanks again for commenting Candice and keep finding the words x
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